We’re looking for someone who is off benzodiazepines and currently experiencing Benzodiazepine-Induced Neurological Dysfunction (BIND) to participate in a media interview. Willingness to go on record with your full name is required. If you’re interested, please fill out the form to apply. We appreciate everyone’s willingness to help, and the journalist will select the candidate who best fits the story.
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I’m worried for the people who truly need benzos for their mental health or to deal with a tragedy. We can’t restrict them too much. Here’s a story about what happens when we do.
A dear friend of mine could no longer get benzos from his dr.so he bought pressed Xanax and never woke up. If he was not taken off of his benzos because of the new movement to not prescribe them he would still be alive today.
Miss. Miller: First, my condolences for the loss of your dear friend. I’m sure your dear friend was a unique person with unique challenges and is dearly missed, being taken far too soon. I too have a dear passed-on friend and a dear passed-on sister with similar circumstances, not to make this about me too much, only that I feel your concern about prescriptions and how they should be used and supplied more safely.
As for the “movement” as you have mentioned, in my opinion, it boils down to, again, corporate greed and, yes, propaganda that you can freely trust the medical industry, blindly, as — currently — where there is extremely far too much lacking knowledge, as well as complicit, neglectful lacking safeguards. Please allow me to explain and please appreciate that this soapbox that I’m on is with complete respect: As the late, great Dr. Christy Huff, the once medical director of BIC, who had experienced first-hand how the medical industry does not teach medical doctors enough about how to manage Benzodiazepines, particularly; and I’m not sure how she unfortunately passed away, nor do I need to know how she passed away, only that, bless her heart, she courageously had stepped forward with reasonable doubt awareness of lacking safe medical practice.
For a drug that was introduced in the 1960s, and for a drug to be disclosed of its true versatile effects that another late, great and highly missed doctor, Dr. Heather Ashton, had written in what became The Ashton Manual in the 80s, how such reckless practice can go on — when doctors are held accountable for such reckless acts, perhaps, is when it will have less negative impact in society. Knowingly or not, with lacking safe practice because of any wrongdoing, such is generally never seen in the light of day of court because settlements are being done — for those who can afford such defense representation — before it would ever reach the public. And, something that is obvious, so long as the lawsuits do not outweigh the profits, this will continue on with no adequate warnings or due diligent safe practice, Big Pharma corporate greed.
Now to speak of my own personal experiences where I ask several times, “Doc, is this setting me up for anything as the dependence is increasing and taken daily?,” each and every time it was “No, Matt, you will be fine..,” only to not “be fine” at all!
This organization BIC is here solely because of the losses and harms that are wreaking havoc on the public, so hopefully this movement will continue educating, preventing any negative losses, but until more adequate awareness is done, such — preferably before any pill is even taken, I could only say is far, far overdue.
Supporting awareness and ensuring your vote when and where it counts — at least as it stands currently — is the only way to keep people from the harm that reckless prescribing does. I will leave it at that, but again, I’m very sorry for your loss.
HI. It is difficult to separate the healing from benzo bind from aging at times, it is difficult to reach a point of being healthy enough to break thru the confusion of figuring out what is wrong with me and why. Benzos effected 30 yrs of my life, slowly getting worse until 10 yrs ago I couldn’t get out of bed or function. I thought I had the flu for a year. Doctors only add more meds so I cut my meds in half ant went thru hell tapering to 2mg daily. I suffered for 5 yrs in BIND before it existed. I was basically in bed for 5 yrs as the symptoms started to lesson and I finally got off. It took 8, months to not be dizzy. I still have some issues, like socially anxiety, headaches, memory and stamina. I experienced almost all of the listed symptoms on the benzoinfo.com web page during healing. I had no medical support and lost all friends and family. Invisible unknown illness tends to cause people to leave. I still suffer from fatigue and sleep issues. Still working to understand.
Yes, I am still trapped with the consequence of what benzodiazepines has done to my life, or so-called as a post “life.
I don’t know if I would actually qualify for the journalist in mind, but I had provided the ample documentation (along with their own medical references, including with a witness of before and after: my psychotherapist and family members — abandoned by family because of this struggling position as it is) and the injury industrial insurance had swept me under their rug after I presented such info, where they apologized and gave me a pension, a peanut pension that I’m barely able to survive with, and where I’m not allowed to work.
I still experience anhedonia, and I still have some difficulty with panic, as well as what they call nonorganic insomnia, other enduring personality changes, cognitive impairments, and more, all that were not there before and with well documented proof, related to the repercussions of trusting the doctors with prescribing clonazepam for a mild sense of anxiety that would have passed long, long ago. Oh, and I feel the need to point out how it caused me obstruction sleep apnea and other sleep architecture problems, undetected, until long after its beginning, which after years my sleep architecture actually did become “normal” again, though still I cannot normally sleep with nonorganic insomnia– I also have sleep studies documentation for this as well.
I cannot write too much more about this because it produces glutamate, cortisol, or whatever it’s called and it will have its major effect on me so if this is enough to get me in any consideration to help others, please reply back. I’ll do what I can to – in a sense — have a sense of purpose after trusting the medical industry with benzodiazepines and what happens when they are proven wrong. Spoil alert: they do everything they can to avoid taking accountability and they stick by each other if you cannot afford a representation of a sort for a defense.
This experience has left me stuck, with no friends, as each and every day and night are a very difficult struggle. I’m not sure how much longer I can take of this deep isolation after trusting a benzodiazepine prescribing doctor.
Some, I’m aware of that they had little if any problems with benzodiazepines use and its elimination but mine is far from little, and I feel the need to describe a bit more:
After over 3 years and over 20 consultations, finally a medical doctor and his words he put in his reports, though opted not to help: “Mr. Cordle’s ability to function has been seriously damaged since his BZP episode” as he is “… permanently neurologically harmed.” The “BZP” is benzodiazepine doctor language and the repercussion, as in the “episode” is how a medical facility directed me with the elimination of clonazepam — something which I requested safe guidance for — and this had caused me severe adversities such as seizures of radical jaw chopping episodes where I almost bit off my tongue several times, major insomnia, public panic attacks from hell, major depression, a stutter that I had not had before and finally it did go away for the most part, though now only when I am experiencing extreme panics. And the medical establishment responsible for such had, via registered letter, refused to provide treatment for such, basically firing me as their patient when I was begging them for help. Benzodiazepine withdrawal syndrome BWS was the initial description, but the word “withdrawal” was/is deceptive as this had become known as a “Protracted withdrawal syndrome,” and now would be recognized as BIND — Benzodiazepine Induced Neurological Dysfunction, adopted, I believe, in 2018. My own conclusion after learning more is a relation adversity that is not officially diagnosed of such is the inability to control my blood pressure, in that it will rise and drop to extremes, in which this causes me to faint and at one point it caused me central retinal vein occlusion, CRVO, only then confused as wet macular degeneration, and this is an entire other experience though the repercussions of the too-sudden elimination of benzos where this can severely impact the blood pressure and its ability to maintain a normal range. All the other diagnoses are officially diagnosed as related directly to irresponsible reckless elimination per medical doctor’s direction; I never went outside of my doctor’s direction. These are things that I feel I should have included, as well as there is much, much more that would never be able to fit within a “Comment.” And now, as evolved, seemingly, with today’s recent events, now I am unable to go to psychotherapy, as with the overwhelming propaganda as well as the overwhelming corporate greed influencing so many people and the repercussions thereof, which I am sure I’m not alone as anyone that had not experienced what I am trying to survive, too, is having difficult time with this reality. Mondays are when I go to psychotherapy and today is the first day over several years that I opt not to because of a sense of doom, and I do not choose to expose myself to such challenges and I’m now worried about my furry best friend, as in I need to outlive her, that’s it; she’s about 14 or 15… I better stop now. I’m starting to share, perhaps, more about my current struggles than I should. Thanks for reading if you’ve reached this far in this comment addendum.
Thanks
Thank you for your great work! You have been a great help to me.