Who knew a harmless prescription by a trusted physician would destroy my life and health? For half of my twenties I experienced bizarre symptoms that didn’t fit any specific diagnosis. They seemed to mimic several chronic and rare illnesses, and so I subjected myself to invasive tests and saw upwards of 70 specialists in search of an accurate diagnosis and help. Apart from the occasional scare, and one cancer misdiagnosis, everything came back normal. I was falling into the “all in your head” category.
Fortunately in 2014, the medical mystery was solved. An extremely competent psychologist was able to identify the surprising source: prescription Ativan, which I had been taking daily since 2009. The Ativan was initially prescribed to prevent seizures after an accident. At the time, I was only provided with a bland warning about the medication’s potential for addiction, and was otherwise assured of its safety. I took it exactly as prescribed. I even asked a few of my specialists if the Ativan could potentially be responsible for my problems. They assured me it was not. However, it started to be the only thing that had made sense in years. Everything fit. The timelines of dosing, the potential side effects I wasn’t warned about, and a strange period with a bad interaction with fluoroquinolones that is, known to me now, notorious for interacting poorly with those with benzodiazepine physical dependence. While I was very angry that I wasted years of my life chasing a phantom illness, I also felt a sense of relief. I could get out of this nightmare. There was now, finally, hope for escape— I could rid myself of the medication and move on with my life, maybe with fully-restored health.
Not so fast.
Consulting the Experts
I quickly discovered one monumental problem: modern medicine is largely incompetent regarding benzodiazepines. This is especially surprising considering benzodiazepine withdrawal is one of the deadliest known to medicine. Everything physicians suggested not only failed, but also made the situation much worse. Some of the ideas posed, that I would discover later were potentially deadly, included: abrupt cessation, admission to a detox center, a rapid month-long taper, removing one dosage per week, switching amongst different shorter- and longer-acting benzodiazepines (usually at incorrect equivalence rates), taking two benzodiazepines simultaneously to “cancel out” the symptoms, adding random medications, placing me in a voluntary coma, and, most upsetting and unhelpful, total denial of the problem altogether. Two physicians even “fired” me as a patient, implying I was a liability. It was as if I was being gaslit. I lost confidence in medicine altogether, but kept trying. This couldn’t be. Surely, somebody would eventually know what was going on?
The reality of my situation slowly sunk in: I was trapped on a medication that was making me sick, that I didn’t want to take anymore, and I was completely on my own to figure out how to get off of it.
But nobody did. The explanations, medical opinions, and proposed options just continued to get more preposterous, finally culminating with a few doctors admitting, “This just happens to some patients. I don’t have a clue what to do for you. You should stay on the medication for the rest of your life.” I was stunned. No answers were available at all? Their solution was simply that I was stuck in a hell of their creating for the rest of my life with no help? A lifetime of feeling this way simply wasn’t an option for me. Not to mention I had many concerns around the risks of taking benzodiazepines during pregnancy, and wanted the benzodiazepines out of the way before starting a family. The reality of my situation slowly sunk in: I was trapped on a medication that was making me sick, that I didn’t want to take anymore, and I was completely on my own to figure out how to get off of it.
The Online Benzodiazepine Community
Backed into a corner, I Googled. Much to my relief (and simultaneous horror), I was not alone by any stretch. I discovered many Facebook benzodiazepine support groups and a forum called BenzoBuddies— their collective memberships totaling over eighty thousand people. None of the people in the groups were surprised. They, too, had similar experiences with useless and often detrimental direction from their doctors in their own attempts at cessation. Beyond some much-needed commiseration and validation, the groups provided what I wanted the most: solutions. They warned the process most likely would not be easy, as a certain percentage of patients can have complicated and painful withdrawals. I didn’t care, I was all in. I finally had an understanding as to what was going on and a plan to follow. I was willing to give up everything to recover my health. And I almost did.
From the communities I learned that the strange cluster of symptoms I had been experiencing for years was from a few things: dose tolerance, interdose withdrawal, and side effects. It was stressed that benzodiazepines must be tapered slowly, about a year or more, often longer. The community strongly discourages abrupt or rapid withdrawal at home or in detox/rehab centers due to the increased risk for severe withdrawal (seizures, psychosis, an agonizing movement disorder called akathisia, and/or suicide) and protracted withdrawal syndrome. The goal in a slow taper is to keep a stable serum level, maintaining even doses throughout the day, and to slowly titrate at a tolerable rate. For me, I would discover, there is not a completely tolerable rate, just a less severe one. Finally, I was told that, even after completion of a long, slow taper, some people would require another year, or even many more, to fully recover from the medication’s damaging effects.
Every cessation method proposed to me by doctors was much too rapid and indicative of an all-too-common fundamental misunderstanding of benzodiazepines and their mechanisms of action.
I began to recognize that my benzodiazepine treatment had been mishandled from beginning to end. I had not been given informed consent when initiating Ativan as I was not provided the full picture of the risks involved. In particular, the risk of developing physical dependence, a physical phenomenon much different from addiction. The medical industry often conflates addiction with physical dependence, which results in confusion and mistreatment. I discovered I should never have been kept on Ativan daily for more than 2-4 weeks, per most prescribing guidelines and FDA Prescribing Information. Every cessation method proposed to me by doctors was much too rapid and indicative of an all-too-common fundamental misunderstanding of benzodiazepines and their mechanisms of action. I also discovered I was not, as I had been told, on a “low dose” of a benzodiazepine, but a moderately high one (not that it mattered— dependence, tolerance, interdose and side effects develop at any dose). Finally, I found my doctors’ suggestions to add additional psychiatric drugs as a supposed “aid” to benzodiazepine withdrawal is specifically advised against in the British National Formulary’s Benzodiazepine Guidance.
If that wasn’t enough, I soon encountered another absurd hurdle: most benzodiazepines are are not available in dose sizes or forms optimal to cessation. Luckily, the online withdrawal community figured this one out as well. Imagining where I would be without these communities is terrifying. Most likely, I would, like so many people currently are, still be blindly medicated, in a significantly worse state of tolerance without any knowledge as to why, spending a fortune investigating symptoms, or worse, rapidly withdrawn or having given up completely.
The Withdrawal
I initially tapered using the Ashton Manual, a guide explaining both how benzodiazepines work and how to withdraw, by psychopharmacologist Dr. Heather Ashton. She is highly regarded within the community for her work running a clinic for benzodiazepine patients in the United Kingdom. Using her method, one cuts their dose by about 5-10% at once and holds until the symptoms abate, at which time the process is repeated.
In spite of my best effort, each “cut” proved to be too large for me, destabilizing me further, and creating a laundry list of new intolerable daily symptoms, including: migraines, numbness, hallucinations, twitching, spasms, blurred vision, eye pain, a sensation of being on a rocking boat (similar to mal de débarquement syndrome), agoraphobia, panic attacks, hyperacusis, sensitivity to certain foods and chemicals, memory loss, confusion, unexplained tooth pain, burning nerve pain, shingles, rashes, chronic itching, tinnitus, olfactory hallucinations, hot and cold flashes, suicidal ideation, nausea, depersonalization, derealization, dizziness, insomnia, and many others.
After about a year and a half of the “cut-and-hold” method, I decided to switch to a more popular method called “microtapering”. Microtapering is essentially making small (microgram, as opposed to milligram) reductions more frequently which add up over time. For me, the microtaper made the symptoms more bearable, reducing the mania and suicidal ideations to a level where I felt safe I would not end my life, while eliminating the hallucinations. The other symptoms remain to this day prominent and disabling.
The other symptoms remain to this day prominent and disabling.
I have tapered four-and-a-half years now and predict it will take over five in total. Even at that slow rate, the process of reversing my body’s physiological dependence to benzodiazepines has completely destroyed what was left of my health and the life I once had. My constant symptoms cause physical, mental, and psychological limitations in every area of my life. Many of my relationships have dissolved, as well, with friends and family moving forward in their own lives while I remain stuck waiting on my nervous system’s slow repair.
This syndrome doesn’t have an alarming and well-known word attached to it, like “cancer” or “car accident,” that instructs people on how to help. It’s a mostly silent epidemic without any instructions for those on the inside or outside of it. Most people conclude that I must be exaggerating, or not trying hard enough, maybe I’m an addict in denial, or some other excuse that blames me, which is usually reasoned with it is unlikely to be this trapped, that something this serious would obviously be widely recognized by medicine. Not so. What it boils down to is this: Myself, and the many thousands of others in my same situation, are in dire need of non-medical support precisely because medical recognition is scarce or unavailable, yet, as a direct result of that medical repudiation, the non-medical support also abandons us.
Myself, and the many thousands of others in my same situation, are in dire need of non-medical support precisely because medical recognition is scarce or unavailable, yet, as a direct result of that medical repudiation, the non-medical support also abandons us.
I’m weirdly considered lucky; many don’t make it as far as me in solving their own benzodiazepine issues. They go to their graves wondering what suddenly went wrong with them. The barriers to discovery are immense. Accurate answers to the problem are not readily available, while incorrect and harmful answers are plentiful. Surviving the cessation is the hardest fight of ten lifetimes. It is long-term physical torture with zero societal validation or financial restitution. Many cannot cope and end their lives.
Forming a Coalition for Change
I firmly believe that so long as patients are given true informed consent, one’s treatment choices for their own body should be up to them. That said, it is abundantly clear to me that prescribers often cause more harm than good with this class of medication and competent resources need to exist immediately for those injured. We can’t rely on medicine or legislation as they have failed to address this issue since the 1950s. It’s also clear that patients who are already physically dependent and do not wish to withdraw should not be forced against their will. Many, understandably, don’t want to do it or are not privileged enough financially to be able to afford to try. Nobody should be forced into hell against their will, especially when they didn’t consent to the risk to begin with. In my opinion, the most critical concerns should include: medical recognition of the withdrawal syndrome, appropriate tapering methods, and research on the nature of the potential damage by long-term prescriptions.
From informed consent at the time of prescription to the proper handling of cessation, we hope to end this dark age of prescriber ignorance, thereby reducing patient injury and giving this epidemic, and the patients impacted by it, the recognition and care that is deserved.
In 2016, to fill my time and to attempt to help those who are also harmed, I founded a nonprofit called Benzodiazepine Information Coalition (BIC). We have an amazing medical board, as well as dedicated volunteers, many of whom were harmed by benzodiazepines themselves. We have had a busy 2 years, appearing in several major news outlets and participating frequently in outreach efforts. Our aim is to contribute to public awareness of the benzodiazepine problem, as well as to give both patients and professionals much-needed educational resources and information. From informed consent at the time of prescription to the proper handling of cessation, we hope to end this dark age of prescriber ignorance, thereby reducing patient injury and giving this epidemic, and the patients impacted by it, the recognition and care that is deserved.
JC Curle founded Benzodiazepine Information Coalition to facilitate awareness, education, research and change.
A lot of blame toward the medical system. Yeah. No one agrees with it. Guess why, humans created it, and guess what, humans aren’t perfect.
We’re actually the scurge of the earth to be honest. Maybe Mother Nature hardwired us to be able to get this far, create this crap, and thin out the population?? Sounds horrible I know. But if you could get a wild animal to talk, they’d agree.
So what you expect???
You were the one that put that tablet in your mouth. Be honest. Where should we draw the line on blame?
No where. Because the blame game doesn’t need to be involved when people’s lives are at risk.
And yes, doctors have put people in situations they wish they weren’t. If it’s a good doc, they didn’t intend it, if it’s bad, they’ll eventually loose their job.
So instead of having a rant on docs scripts. Take some responsibility for what your hand puts in your mouth.
I mean, I studied for months after I was told I would have to take omeprazole for the rest of my life, gutted. An antacid. Lol.
They passed you a tranquilliser, and you chose to take it.
Obviously you were never in this situation or on these meds or you would never have said that absurd, sarcastic, and ignorant comment. Did you seriously just compare an antacid to a benzodiazepine??? That alone shows how little you know. Please educate yourself on the topic before responding.
Honestly dude, f*** off.
You show yourself to be absolutely ignorant on the concept.
They tell us to trust the doctors, and then when we do trust them we are the ones to take the blame, not the docs who prescribe these absolutely potent drugs like candies and then don’t give a s*** if you live or die.
“trust the doctors” they say.
You don’t seem to be a very happy person yourself as well.
Lord Corporation
It’s been 51 months and counting since I stopped taking Klonopin. I kept a diary for years tracking my progress and quest for the magic herb, diet, lifestyle etc. I never found it. Although most of the original symptoms have gone, I have several remaining that erupt periodically. They all appear together when I get a relapse, so to speak. They are – twitching (mostly when I try to relax at night), verbal outbursts, vertigo, brain fog and often irregular heart beats. When this problem shows up, it may go on for a few hours or a week or two.
I’m at the point ( I know many people don’t believe it’s possible) that I’m starting to believe that the relapses come from small amounts of the remaining benzodiazepine leaching out of the fat cells into the blood stream and starting the withdrawal cycle again. The reason I believe it’s possible is because for the last several months I started experimenting with dry fasting. Each time I came off the dry fast, I felt great for a day or so and then the relapse would start again – only this time they were much worse than usual. I have repeated this 5 times now – all with the same result.
Has anyone had a similar experience?
Honestly dude, f*** off.
You show yourself to be absolutely ignorant on the concept.
They tell us to trust the doctors, and then when we do trust them we are the ones to take the blame, not the docs who prescribe these absolutely potent drugs like candies and then don’t give a s*** if you live or die.
“trust the doctors” they say.
You don’t seem to be a very happy person yourself as well.
Sorry Paul, the website glitched and I replied to the wrong comment.
No Paul, it’s not small amounts of leftover benzo! I have been in the same boat as you for 6 years now. The only solution to calm your nervous system is to completely eliminate MSG from your diet and limit foods rich in aspartic acid and especially free glutamic acid as much as possible. Do not hesitate to take a little acetaminophen in the event of a relapse. Sorry, I’m French, please excuse my translation mistakes!
Yes, I believe you are on to something everytime I detox i get worse
Cold Turkey of lorazepam when Pandemic began, my doctor close the office and hide under the bed. Could not get a hold of him so I decided to get off pills and not be dependent on drs that I have to be nice to when I really want to tell them a few choices words. My daughter in law is a federal lawyer and we’re going to get this dr and make his life impossible
I am an idiot who made a catastrophic mistake. No taper was necessary. Not suggested by mental health NP. I had never heard of Benzodiazapine withdrawal. How it eluded me I don’t know. After 22 years of being the most compliant patient taking 2mg of Klonopin successfully for my severe anxiety disorder, (only med that has ever worked) keeping my prediabetic sugars tight and neuropathy in my feet stable I started a slower taper to slightly reduce my dosage without talking to my mental health NP. After not trusting my NP’s opinion that I should forget about Alzheimer’s because she could get it, or I could get it and the findings are inconclusive I lost all respect. Knowing I was upset about developing Alzheimer’s it would have been the perfect time for her to talk to me about tapering or inquire if I was considering it. Nothing. She never mentioned the word withdrawal, asked me years used, reviewed my serious anxiety disorders or medical issues. Had I heard the words withdrawal and anxiety it would have been stopped me dead in my tracks. Never would have touched my wonderful meds. Heading to Dr Google I completely missed the words withdrawal and anxiety yet again. Wasn’t searching under Benzo withdrawal as I didn’t know it existed. Totally missed the phrase Benzodiazepine dosage decrease will cause anxiety and panic. I found instructions on slowly tapering Klonopin keeping it comfortable. My mental health issues include making decisions on impulse due to severe anxiety. I began a slow taper without talking to a soul. In 2 months and a slow taper I had reached my goal of 1.5 mg. Yippee! I was fine for months slight headache some tension, a rash. By the 6th month, anxiety was growing, month 7 after start of taper blood sugar rising. Month 8 I crashed. The most incredible anxiety words can’t describe the pain. Needless to say learning about withdrawal syndrome was devastating and the fact I had missed it in my research caused increased self loathing and blame. My new Prescriber, she had moved to another location, brought me back to life by up dosing to 3mg. Felt better quickly. Expecting this dose to last for 10years I was relieved. 7 months later interdose withdrawal struck. Devastated. Panic. Deeper self hatred blame and anger. Now on 3.5mg. Feeling better again but scared to death every minute that I’ll develop a tolerance to this dosage soon. My cholesterol has popped, my hair is falling out, my blood sugar is rising because I already know from my previous experience that I am the long timer user who will have a protracted withdrawal. This is all my fault for my ignorance about my meds, not speaking up about a dosage decrease to someone and for failing in my research. Simple stupidity. My mental health is poor as I know I don’t have the strength to see a protracted syndrome through to its end with my anxiety disorders at the age of 60. Why did I touch my meds haunts me? I was fine. No need to taper, keeping my anxiety and other issues in order. Although now over medicated if possible and no tolerance build up after 2nd updose I will never taper again. I ruined my already challenging life because of an impulsive ignorant decision. There’s no forgiveness in my heart for self. Not much for the NP either. I can’t even imagine the suffering that may be in my future. A dose decrease may not work due to kindling and up dosing causing additional downgrading of GABA receptors. My last dose reduction proved that. I could have avoided all of this despair had I only opened my mouth. I could have avoided all of this and continued take my 2mg and continued the quality of life it provided. It’s surreal. Scared every minute and I have to live with myself knowing I could have prevented this. May God show all mercy. Thank you for listening.
Good for you – hope your daughter in law takes this Dr. to the cleaners – and then some. I’ve suffered Klonopin withdrawal 19 months. My Dr. put me on it to try to wipe out the horrid effects of the Abilify that nearly killed me. So I took the stuff for 6 months and then I insisted on tapering off it when I found out how life threatening it was. As usual, never a forwarning of the toxic Klonopin. “It’s fine,” she said. “You don’t ever need to go off it.” WHAT? I don’t even HAVE anxiety! HELLO? What in the hell is WRONG with these people? I’ve lost ALL trust in the medical community. I am living through an indescribable HELL that shows no sign of ending anytime soon because I was casually thrown onto a drug I never even needed in the first place. I have been poisoned by people who refuse to help me. I’m a fracrion of my former self. And there are millions of us out here losing our jobs, our families, our LIVES. The pandemic pales in comparison to THIS. Please, make sure your daughter in law throws the book at your doctor. I can’t afford a lawyer. Most of us can’t – that’s why this criminal prescribing behaviour continues to poison people who already suffer so terribly. It’s disgusting. Please, PLEASE – take this, “doctor,” of yours to the highest Court. You have my complete support.
Yes! Thank you for putting my feelings into words! 💗
Y’all realise a part of getting over addiction, is learning to forgive??
You chose to take the pill, stop blaming doctors, otherwise this will go in circles for years.
Did you get held down, against your will, and have your mouth forcefully open, pill shoved in??
Look. Everyone. It’s ok to admit you have addiction issues. Alcoholics can go their whole life without admitting it. Why? Because that’s how our society’s been programmed. The majority of the human race has some kind of addiction that’s by not healthy, and they never admit it to themselves.
There’s a huge difference between addiction and a physiological dependence caused by a doctor’s lack of responsibility. Most who are prescribed Benzos are mentally incapable of making decisions and have no choice but to trust a doctor and follow their instructions. Most people stuck in Benzo withdrawal and damage are not warned at all about the dangers of Benzo toxins. Despite widespread suffering and suicidal deaths that result, these poisons continue to be doled out to the unsuspecting public by, yes, doctors. It’s not a blame game but simply a fact. This isn’t about not being able to forgive anyone. It’s about survival and trying to keep millions of other people from being harmed in this horrible way. If people need to sue the medical profession to get it to wake up and stop killing people, then please, don’t criticize them for having the guts to do the right thing. Anyone who experiences Benzo toxicity and has the strength left over to take the medical profession to task, should be applauded, not put down and discouraged. These people are heros and nothing less.
Dear Bob,
You are not a nice, compassionate or thoughtful person. You are quite mean making negative and hurtful comments on this support group board. This is not a board for hateful people trying to find a place to express their perceived superiority. I’m sure you’ve heard this from your friends and family as well. You may want to consider studying kindness and compassion. Yoga might help, or maybe read Buddhist philosophies.
Bob, the rudeness and lack of compassion you have is unbelievable.
People with anxiety and panic go to their trusted and “educated” doctors for help. The doctor prescribes them a very addictive and dangerous prescription drug with no cautionary information given to them, even when that info is specifically requested, as in my case. This “safe”medication does help the anxiety so all is well, right?
Years pass and other doctors are seen for the growing list of headaches and neurological symptoms. These docs discuss your Klonopin dose and may adjust it, but no one tells you this drug is not for use over a couple of weeks r recognizes it is the cause of your neurologic problems!
Decades later, I find I have unknowingly damaged my brain.
Am I pissed? Hell yes!
“Did you get held down, against your will, and have your mouth forcefully open, pill shoved in??”
Uhh…yes. Plus injections too, they (certain doctors) are very “liberal” with certain meds…
Did you get held down, against your will, and have your mouth forcefully open, pill shoved in??
Yes! They also forcibly drug people to blast 100 volts of electricity straight in to the brain (over and over again!).
So yes, some of us have had very little “choice” in the matter…one can’t when it’s 5 vs 1.
You need too do some research before calling this addiction. I have no interest or enjoyment from Klonopin. I continue to take it because if I don’t I will have the most magnificent list of conditions from diarrhea to insomnia to hypersensitivity to smell, touch, pain, light, overarticulation of my feet and on and on… it is truly a bizarre and endless list so I won’t bore you. And with benzodiazepine withdrawal syndrome, you don’t improve as you get farther away from your last dose the way you would from most drugs. My physical problems mount and spike. I had decided to reduce my dose unwitting of this syndrome crap and felt nothing for about a week. Then my brain went on overdrive. I couldn’t sleep – even 1 minute – for 7 straight days when I showed up at my doctor’s about it. He said “Maybe you’re not tired.” That’s when I realized he shouldn’t have an MD. This isn’t about addiction. It’s about brain receptors being altered and now physiologically dependent on benzodiazepines to function properly… well, at all. Forget “properly.”
How about try enjoy your life.
Forget about the ones that bring you down.
And maybe an English class or 2.
You sound as evil as the medical system. Your going to ‘get back at them’.
Sesh. Talk about fighting fire with fire. You’ll never get back at ‘the man’. Maybe a doc. But where does that leave us?? We get to hear your cool story. Great.
Your daughters a lawyer?? Why are you wasting time on here whinging?? Got kids? Spend some happy time with them. Let your daughter deal with the stress, she wants it if she became a layer.
Wow…is all I can say! If I actually took you seriously I’d be quite angry, but you’re so not worth it. Learn the difference between addiction and physiological dependence, then take a course on empathy.
Having a laugh at other people’s expense. You must be the low life of the party.
Bob’s only here because he’s been hurt by someone who’s gone through this but hasn’t the first clue what they actually experienced. He’s just a lurker who finally had the balls to speak. Don’t forget to turn in the balls, Bob. I’m sure they’re on loan from your wife.
Can I ask how many mg you we’re taking? I was prescribed Klonopin to get off Ativan about 12 or so years ago. I was also prescribed Baclofen and 3200 mg of gabapentin for nerve damage. I’m off the Baclofen, I’ve reduced the gabapentin to 1500 mg and I tapered to 2 mg of klonopin. Just lowering it 0.8 5 days ago and I am dizzy, have nightmares, sweats, I’m emotional, don’t feel like I’m even here, I want to hide from everyone… I may have a tooth problem so made a dentist appt for what may not even exist. My heart feels like it’s working overtime. I’m in my 60’s. Am I nuts? Is something not right with me? I had also been prescribed Zoloft which I weaned off of a few years ago, and still have depression from it. I’m confused I guess on what’s causing these symptoms. Thank you for reading this.
Hello Dav
If I am reading your comment correctly here, you indicate that you reduced your Klonopin dose from 2mg to .8mg? If that is correct then I will tell you that is a very aggressive reduction. If you have not yet read the Ashton Manual I would highly suggest that you do. It provides guidance for tapering off of benzodiazepines. Everyone’s taper is unique in duration and symptoms experienced but having a base line to follow is much safer and helps to not just be winging it. Also joining any number of online support groups can really be of great value for much needed support. Here is the link to the Ashton Manual – – – > https://www.benzo.org.uk/manual/
How could I read all of your stories without tears!!!
I get encouraged so very much by all your struggles and success stories. I’ve gone through hell so many times, and my young days were shadowed by this evil med – BENZO!
I am 63 years old. I was on Xanax and Paxil for 10 years for major depressive disorder and anxiety disorder. In 2015, my Psy. Dr. switched to Clonazepam, 3mg during my 5th hospitalization for MDD, anxiety disorder and panic attacks in 2015.
On top of Clonazepam, 7 different meds were added every time I saw new Psychiatrist because I either moved or Psy. MD retired. My brain was always foggy, lethargic, had to sleep 10-12 hours a day including 2 hour nap without fail. I had 4 auto accidents for the last 10 years. I gained 22 lbs.
I, myself started digging into some articles about the side effects of all my meds. OMG! High blood pressure, cholesterol, triglyceride, A1C problems I had – all the poisonous meds I’ve been taking. I was very slim and healthy until I started these meds.
As years go by, I got weaker, depression got worse, insomnia, memory loss, disorientation, hair loss, excessive eating, ……
Then I met my current Psy. Dr. who strongly advised me to get off meds after 4 different sessions of treatments of Transcranial Magnetic Stimulation(lasted about 6 months). THIS WAS A GAME CHANGER!!!! Believe it or not, none of my previous Psychiatrists, Psychologists recommended it to me. One of them did not even know that such thing exists. I found TMS on my own after I digged into the answer to my ongoing question of “Am I going to have to live like this for the rest of life? I feel I will not be able to.” I was able to manage getting off all meds, one at a time, except Zoloft 100 mg, and Clonazepam down to 1mg. TMS made it happen without severe withdrawal symtoms. Or reduction of Clonazepam was masked by other meds.
However, now it is the time for real game. Doing Water titration by Ashton Method- 2 ml reduction of .375 mg Clonazepam diluted in 250 ml water, every 3 days in the morning, leaving .5mg for evening for sleep. I am now down to .707 mg per day.
I am constantly feeling like I am on a floating boat.
numbness, weird sensations –
Objects feel bigger or smaller than normal
i.e., food such as noodles, pasta, rice feel smaller
Some objects feel bigger and heavier, like mugs, dishes, clothes
Cars look too small.
I can not clearly say what time I fell asleep at night, whether I was asleep or not throughout the night.
Sometimes I hear things ‘hi!, beeping sound from microwave!’ which was not real! Also feel that my throat got swollen, often get choked with a sip of water. Had acid reflux, treated with Omeprazole, swallowing tests-OK. Still choking.
I am positive and hope that these are all WDs and will go away. Did anyone have these experiences? It could take years until I feel normal and healthy again. Really, I wish there were ways to make disappear BENZOs from on earth!
I am looking forwards to your replies. And thank you JC! You saved hundreds of thousands of people who suffered from BENZOs of which no doctors, no government agencies, no pharmaceutical companies were concerned. I also thank Dr. Ashton.
With All My Best,
JC -I just want to send you my most heartfelt acknowledgement of what you’ve been through and what you’ve accomplished. You’re an Olympian, a warrior and someone who is massively helping awareness of benzo dangers forward. Thank you for everything you’ve done, everything you’ve been through to get here. I’m so glad you made it.
Taking lorazapam ruined the last 15 years of my life. I didn’t realize what had happened until i started tapering off the drugs.i had gotten married to an abusive slob, moved 4 times, and my behavior was so bizarre. As i was slowly tapering off lorazapam i developed auto immune disorders, depression, anxiety, mouth sores broght on by teeth grinding and sucking on my mouth so badly i broke pieces of my teeth in my sleep. I am now 64 years old, my health has rapidly declined and before i started taking lorazapam i was pretty, healthy and relatively happy. I just needed something to help me sleep. It has been a year since i took my last pil but i feel terrible, am in constant pain, suffer with dizziness and depression because i woke up in this old body and i have to deal with the reality of everything i had done while taking Lorazapam. My doctor said it’s like waking up from a coma except i know everything that happened as if it happened to someone else. I have no feelings and no personality. This has been ty he worst experience of my life.
How I rue the day I first popped a Valium in my mouth.
The struggle is real, the pain is real.
You have my deepest genuine sympathy.
I am Three years benzo free and am still having flare ups. Fortunately they are becoming less and less frequent over time.
I am 41 now took my first benzo at 20. Used and abused them for the best part of twenty years.
It does get better but it is a damn slow process. What I’ve learned: Avoid stressful situations and people that cause you distress as much as possible.
Swim, getting in the water and swimming does wonders for benzo withdrawal (I discovered this randomly).
Don’t drink alcohol ever. Marijuana can help but be aware it can also exacerbate symptoms (edibles work best small dose one hour before bed).
I genuinely wish the author and everyone struggling with benzo injuries all the best in their abstinence and recovery.
How these evil insidious little pills still exist is beyond me.
They are a physiological hand grenade.
I took 19 Ativan pills and 8 Ambien over a 35 day period–to help me sleep after being given an overdose of Vitamin B-12 shots that caused terrible insomnia and burning skin. I stopped the meds abruptly and am having terrible anxiety–terror in my gut– chills, insomnia, GI problems, shaking inside and out–I will stop there. I am into my 22nd day of this nightmare. I don’t want to start taking any meds again as I have come this far in withdrawal and I took so few pills–surely this will end soon. I have had several days when I was normal and feel pretty good every evening, but the anxiety I am experiencing when it is on me is overwhelming. Has anyone had experience going cold turkey after so few pills? I was having interim withdrawal almost immediately. I would take Ativan for 4 nights for insomnia and then the next night I would crash at 6 and sleep all night on my own. The next day I would experience panic I have never known before. Could not take the drug from the start. Horrible. Any thoughts?
Yes. Back in February, I was grieving a loss and had a mild panic attack and went to the doctor for it. Was prescribed lorazepam. I took it that night and boy did I feel good. After that I only took it as needed. It wasn’t until I drank wine that I had a full blown panic attack ( I hadn’t taken the pill in two days) and the Er staff told me to take it on a regular basis. Long story short, I was on Lorazpam 1.5 mg for about two weeks and hated how I felt on it so I stopped it. Bad idea. I had the worse rebound anxiety known to man. My doc put me on clonazepam ( longer acting benzo) while I worked to find a detox doctor. In total I was on benzos for about 3-4 weeks and my detox doctor told me I could stop cold turkey. Afterwards my rebound anxiety was bad and I developed acute gastritis. It’s now April and I am just now starting to feel somewhat normal. My detox doctor did not understand why I was experiencing these withdrawal symptoms when I’d only been on it for the recommended 2-4 weeks. He just concluded that I was sensitive to the medication and to never take it ever again. 100% noted.
I took 1 mg of Xanax for 15 days, off for 7 days until refill, Then tapered 5 mg in 15 days. I have been off 28 days still have sound sensitivity, tinnitus And mild insomnia. Thanks for posting, seems like another month of hell?
Wow, I feel like I’ve found my place after reading all your stories. I was put on Ativan for dizziness, inner ear/balance disorder when I was 37 years old. I’m now 65. I would not have thought to ever get off of it, but my doctor was relaced by a new one who refuses to give it to me and wants me on antidepressants, which just don’t sit well with me. It’s been a battle with her! She does not understand. Anyway, I decided to get off Ativan rather than have the ongoing battle with her about antidepressants and humiliating urine tests to check for marijuana and alcohol. I’m down to 1/2 tablet every 12 hours, it’s been hard. My question is lately I’ve been experiencing severe pain in my lower left leg, along with burning abd tingling. All kinds of crazy thoughts about what could be wrong have literally kept me awake at night (I can’t sleep). Could this be caused by Ativan withdrawal? I appreciate and response and help. Thanks, God bless you all and continued good luck.
None of these stories i am reading online say how much benzo they were taking a day? I have been on 1mg a night for prob 5-7 years. Around the end of Last year i decided to start tapering off and was down to .25mg. I was getting what i thought were postictal effects of my seizures. Last month after having them bad for a week i cracked and went back on 1mg ativan a night and it really helped for awhile. About a week ago i notice i am having trouble sleeping again and i just realized those werent my seizures they were effects of tapering off this ativan? Now i am back at square 1 ive only been back on 1mg a night for about 3 weeks. Am considering if i should cut back to 3/4 mg or go even more? Idk anything about drug addiction. Luckily i dont get cravings for this shit but i never took it to get high or relieve stress. I think maybe now that i know what those feeling are is actually withdrawals o can deal with them better?
I just stumbled across this article and Tom, if you have already received help, just disregards. I have been on lorazepam (generic for ativan) since 2006. I know, crazy, but it has allowed me to do things that I never thought possible, like travel and relief from panic attacks, etc. I feel leery about this article because I read it and did not find “how much?”. Perhaps I missed it but my response is to you. My dose was at 2 1/4 to 2 1/2. Beginning in March of this year, I began to taper down, which I have done before. I am now on 1 1/2mg and plan to continue tapering down. The best way I have found to taper down is to do it slowly and evenly. I taper 1/4 mg every 3 weeks. The first week is tough. Little sleep and strong withdrawal symptoms but manageable. The second week is a little better but unstable (one good day and one bad) and by the third week I am much more stable and doing well. I spread out my medication to 3 times a day. I do 1/2 mg at 6am, 1/4 mg at 3pm and 3/4 mg at 10pm. I will be reducing again in one week (down to 1 1/4 mg) and the way I plan to do it is 1/2 at 6am, 1/4 at 3pm and 1/2 at 10pm. I don’t use a pill cutter. I literally just bite the pill in half. Hoping the best for you and others.
I tried again and went through utter hell. I was having delusions. I was hallucinating. It was crazy. 1/4 was too much and i realize thats why the end of last year i was in and out of the er so much. I am kicking myself in the ass for ever going back on 1mg but i have started again. I bought a scale last month and have been microtapering and so far no serious withdrawal symptoms. I ma down 10% in one month. Seems slow but at this rate i should be off within a year. Plus i pray none of those crazy side effects i felt tapering off too fast last time.
Half or quarters is too fast. We have tapering methods on our site, please look at them.
Withdrawals from any gabaergic will cause these symptoms. You were on them for 5-7 years so the length of the taper needs to be comparable to not experience symptoms immediately. I would cut by half a pill or even a quarter of a pill to start, and you’ll still probably experience some rebound anxiety, insomnia, or twitching. When you taper you need to stay on the reduced dose until you don’t experience any symptoms, then stay on it for another week to a month, THEN reduce the dose. You’ll never not experience symptoms, but you should be able to control them to a degree. I don’t know if you’ll read this because it’s been 3 months but from my experience it should help anyone who does read it. Once you’re completely off you’ll experience the worst of the withdrawals and temptation to reuse will be very high, it’s important that you do not. If you continue to use you will set yourself back that much more.
I am new to this site and like what I read. This information is helping me understand what is going’ on with me. I started taking 0.5 mg of klonopin 1 times a day to relax pelvic floor muscle tightness. I am a 64 yo male. After a neck injury and surgery I was put on 0.5 mg 2 times a day. Now tapering for 16 days. One side effect that started me to tapper is my skin became dry and burning especially my feet they will not sweat. Has anyone had this problem while on Benzos All my tests are normal and dr say Benzos not the problem. Any information will be very helpful thanks.
Gsd55
I’m living with this burning, sensitive sensation on the soles of my feet right now, along with a myriad of other problems. I had no idea this stuff was so evil. I would’ve never agreed to take it.
Hi I’m French. For anyone who thinks they are suffering from prolonged benzodiazepine withdrawal syndrome, greatly reduce or, if you can, completely stop foods high in glutamic acid or histamine. These are 2 excitatory neurotransmitters that can no longer be countered by our faulty gabaergic system and which in excess considerably prolong withdrawal with 99% of the symptoms of fibromyalgia.
I am researching this now and also juice fasting and cleansing to help me. Down to .5 mg k 2x/day. since 2012 ( started at 2 mg=3x/day) alcohol daily. weed. other meds. I am doing anything i can to make this smooth as I have 4 children and they need me-am a widow. ( kids are 11, 10, 10 and 7 ) Very sad how i once thought we would all be better off dead as ” life is not worth living” (knowing nothing about the benzo i was taking contributing to it. Now-hope and some light in my world. thank for this comment.
To my knowledge most people have to be on a benzo daily for at least a month to have significant withdrawal symptoms, not to say there won’t be discomfort, depending on the dosage and the individual’s sensitivity. I was on klonopin FOUR MILLIGRAMS A DAY for 3 YEARS and quit cold turkey in a medical detox over a period of 10 days with Librium, and stayed for another almost 2 weeks to be monitored and given “comfort meds”. It was really unpleasant, almost to the point of unbearable. But those 3 years of being on it, they were terrible, like being in a thick haze where I knew time was passing, but it didn’t seem to be, and I just wanted my freakin life back…I had a terrible trauma which had lead to debilitating panic attacks, and sure, the klonopin worked for that but I felt NOTHING. Maybe some sort of dread? I can’t describe it. Anyway. It took about 6 months of eating really clean, drinking lots of water, exercise, stress reduction, vitamins etc to physically feel ok and about another 6 months to feel mentally somewhat myself. I think it depends on so many individual factors how a person will experience withdrawing from a medication or substance. And it’s true some people do have protracted withdrawals forever. I KNOW my brain was altered, I am definitely different, and not so much in a good way. I do believe my brain was damaged. It’s still better than being on klonopin! At least, for me.
I went cold turkey for 7 days off Valium and it was bell I was hallucinating talking to the wall I thought I’d been working away . Talking to my girlfriend like a friend from work. Then I started fitting . I had to buy some off the street and soon as I took them it hit me so fast . I couldn’t remember half the things I did my girl friend said I frightening. The hallucinations when 20 times worse . I hadn’t eaten or drank anything in 7 day . I take 4 10 mls every day street benzodiazepines. So I don’t no even no what strength I’m taking . I want a proper script and to a rapid withdrawal before I star work a again . It’s the worst tablet to be invented
Hi. I only took Ativan when my doctor prescribed it to help me for sleep when mom passed. I took about 42 pills spread out over 10 years. Sometimes I went years without taking any. The most frequent was one pill a month. I did notice that I was starting to have insomnia. I complained about it for about 4 years. I also noticed that eating out at restaurants brought on anxiety sometimes. Especially loud busy ones. I would just order a drink to help with it. Then one night I awoke to the entire room spinning. I was holding onto the bed. I learned I had BPPV, a type of vestibular vertigo. It was treated with some physical therapy type maneuvers. After that I always felt like I was on a boat. Then about a month later tinnitus started 24/7 and never stopped. I just thought I had vertigo problems. My mom did too. No one ever questioned that I was taking Ativan. Not one medical person I saw. Not even my family doctor. 6 months later I was sick of the “being on a boat” feeling. I had also read my symptoms could have been a vestibular migraine. Frustrated we headed off to the ER, my husband and I. I explained my vestibular migraine. I had vertigo with no headache I told them. It was pressure. It was decided they give me a “migraine cocktail” intravenously. It’s something commonly used for migraines. Reglan & Benedryl. I was told in these exact words: “Reglan can make you irritable. So we give Benedryl with it to counteract that.” Seemed okay to me. As far as I could remember. I had not had an Ativan for about a month. Not that anyone in the ER questioned my use of Ativan. This is just a hindsight epiphany. As soon as the IV of Reglan cocktail was injected,
everything went horribly wrong. My heart raced, and thoughts of doom & gloom were strong and immediate. It did not help my vestibular migraine. It only almost killed me! I immediately could not sit still and wanted to get up and pace (this is akathsia). The pacing subsided, but what followed was months of suffering. Come to find out Reglan is used for migraines & gastroparesis yes, but it’s also an old antipsychotic from the 60’s. A dopamine antagonist. It has a black box warning for tardive dyskinesia. A body movement disorder that can be permanent. I got the other movement disorder – akathasia. An intense feeling that you can’t sit still. It also came with doom, gloom depression, suicidal thoughts, inner tremors, feeling like I was going to die. This all started to taper down slowly I got better over the last 9 months. It was very similair to benzo withdrawal. The light bulb went off in my head when I read this article because of the “boaty” feeling. I had that months prior to the Reglan. I stopped the Ativan the week it happened. Haven’t taken it since. But I do wonder if that Ativan predisposed me to that Reglan reaction. Even though I took it infrequently , I think I was having interdose withdrawals. It was a rough nine months. Was I dealing with a Reglan reaction AND Ativan withdrawal? I still have some neurological symptoms. I feel “flu-like” or like I have a stuffy head cold when I am in a lot of stimuli ie: lights, crowds. I went to a Christmas play this past holiday. In a crowd of about 3400 people. I could not sit still. I felt fine standing. Could not sit. I felt fidgety. It was actually torture & I could not enjoy the play at all. That was 3 months ago. I now drive, and go to stores. Some days I have zero symptoms. Some days I feel like my feet are concrete when I’m walking through the store. It was very bad within the first months. I couldn’t even sit as as a passenger in a car at a red light without screaming (that’s akathasia for you). I’ve come a long way. I wish I could shake this tinnitus though. Also after reading your article. I realize I have hypercussis too. I think I was already in withdrawal. The Reglan in a way saved me because I stopped the Ativan. Also in researching the Reglan reaction, there really isn’t a lot of info on it, so I read about benzo withdrawl. I knew better than to take a benzo ever again. I actually take zero meds. I guess at least now I understand what’s going on. Puts answers to all the weird questions. After this experience, I’m actually afraid of medication. What if I need surgery? Aren’t anesthesia meds sedating? Are they benzos? How do you handle surgery after benzo withdrawal? Are some people really more sensitive to benzos? Can some people really take them for life without any issues? Guess I’m not one of those people!
Reglan is a serious drug. It can have lasting psychological effects after just one dose. Just going onto drugs dot com’s review section gives me nightmares. I have gastroparesis and I’m sure it works for some people but I’m not going to try to find out. Stay away from that one.
Shelly Mayer, I had similar symptoms from both ativan and when the ER gave me halperidol and reglan for “anxiety” when I was really having interdose ativan withdrawal. I eventually quit ativan cold turkey after 9 years of my rx. I developed tardive dyskinesia and dystonia and protracted benzo withdrawal syndrome that continues after 3.5 years. It is pure hell torture no one understands. I am blessed to have a husband who tries to understand and am raising my daughter who is amazingly supportive. I homeschool and drive when I am able to safely. When I am in a bad wave I hunker down and everyone just has to help out, otherwise I just pray my way through most days. I pray my complete healing is coming. I’ve been poisoned by mold and methane, benzene and toluene but that was nothing compared to ativan and the psych meds they tried to force on me. I do not have mental illness, never did. I have a B A. In psychology and a paralegal certificate. I left the workforce in 2006. I have no provision for retirement. My husband is amazing in his drive to support and grow our family. We are doing well financially but unless there is a miracle treatment like stem cells I just have to wait for God’s healing and pray nonstop I make it. My family would be devastated if I lost this battle after fighting so hard for so long. No diet, exercise, medication, supplements, nothing gets rid of protracted withdrawal syndrome except time. It’s a hard pill to swallow.
That is so nice of you, You’re an Angel. I wish my older Children would help, but they can’t understand this drug. I have to take care of my Husband, who has Cancer, plus, I am cold turkey on 40 years being on this drug, was in the ER twice, and a young doctor told me not to come back for they can not help me.
so many do not understand this drug, I pray for death every night, I can’t continue this way, and wish I had a Doctor to help me through this. Your Mom is so Blessed to have you!
Please go BenzoBuddies forum
I started taking ativan probably 4 years ago. My doctor prescribed to take after seizures to help me relax. I had never heard of benzos and when i found it helped me fall asleep i started taking 1mg every night. After around 3 months i tried to quit taking it and realized i couldnt. Ive never taken more than 1mg at a time and only took more than 1 a day when i was recovering from seizures. About 4-5 months ago my pharmacy refused to refill it and my my doctor was out of town for a week. I ended up in the ER twice with the worst withdrawal symptoms. After that i started tapering off. Taking about 1/4-1/8 off at a time and was down to 1/4 mg a night. Earlier this week i was in the hospital recovering from a bad seizure and for 3 days they put me back on 1mg a night. Last night i went back on 1/4mg and felt like hell today. Should i go back to 1mg a night and restart my taper or is this just my head still recovering from those seizures? My biggest concern is i have no idea if my doctor will even refill this, last thing i want is to be cut cold turkey again.
Hi, I hope you read this and it helps you. If your mum was on 500mg of lorazepam !!! ‘That is the equivalent to 3750mg diazepam and 250 mg chonazepam!!!! I calculated what chlonazepam equivalent would be ( if she went to chlonazepam from lorazepam at 500mg and that also is 3750 mg diazepam! That is really really really crazy high and real care has to be taken tapering down very slowly like 10% or less just with diazepam ( I’m not sure about other benzos but Ashton manual goes into it. I hate to wave the Ashton manual about, but Prof Ashton r.i.p. also goes into conversion tables for different benzos and withdrawal. She was a very very experienced clinician in the field helping people withdraw from benzos. She has made her manual available in many languages for free. It’s like the bible and thank goodness she has done. The link you need is,
https://benzo.org.uk/manual/ is Chlonazepam has about a 30 hour half-life, lorazepam has a 12 hour half-life. Id check she is on the equivalent dose of clonazepam that she was on or very near to it to start with. I’m not sure but it may have been better to go straight to diazepam which also has a long half-life maybe? The danger is the withdrawal really, tapering too fast can be fatal and often is. It’s not so much getting the drugs out and all will be ok its the backlash from the body in withdrawal, the rapid firing and overfiring of the nervous system. People in prison have had their meds took off them, for example, Xanax and had seizures and died. There was even a case where someone settled 4 million-plus due to this issue and the death of a relative. I’m not sticking up for them in prison its just an example of what happens in too fast withdrawal and a common one. I feel duty-bound to tell you this to possibly save a life here! The doctors don’t always know what they are doing and it’s not always safe, far from it to be honest. I really really hope that’s a spelling error or the wrong name of the drug she was on. I was on 100mg of diazepam and I’m half her age and pretty much nearly died on a cold turkey a year ago and tapering has been a total hell ( and I’m not exaggerating ) just from that. I still have severe withdrawal 2 months later. You may find the calculator useful on link https://clincalc.com/Benzodiazepine/, as it shows the conversion dose to diazepam. Most people convert on their current dose of benzo to the equivalent in diazepam then taper off diazepam as it’s got a longer half-life. Id seriously check and get in touch with the GP doing the taper if somehow the dose she was on has not been checked or disclosed properly. I feer for her health and sanity 73 is fragile enough! She needs immediate help to get the dose checked and correct first like today! Sorry to be blunt, before any of the psychological support groups etc and its a wonder she is still alive, to be honest, but she’s in possible grave danger if things go on even hours if its wrong. Take care be interested to know how things have gone. All the best.
Fighting tears as I read this today. It was two years for me on July 11, 2019 and I am blessed to be able to even write this. I was locked away in my local hospital to cold turkey klonopin after being prescribed for 10yrs.
I hit the floor litterally, pretty hard when my nervous system crashed and was very lucky to have had other patients to help me as the medical staff just yelled at me and left me hungry and in my own waste. I lost all motor skills and my entire body shook like I was end stage Parkinson’s.
I managed to survive this and fight to regain almost normal functions. I still suffer neurological issues but I have gotten my memory back as well as being able to retain new information. Anyone reading this, don’t give up. Happens at different speeds for us all but it does and it absolutely will get better.
I needed to read this today. I lost my facebook a while ago and I need to know what I went through was real. The things I still struggle with our real. Lack of support is so hard in this.
My heart goes out to you, Brenda. Please don’t give up. I pray for my life to end also, but that’s just plain giving up. We HAVE to find an answer. What, I don’t know, but let’s give each other support, ok? I’ve been on Xanax .25mg. 2-3 times a day for 34 years , then a year ago they switched me to one 1 mg. Extended release Xanax 2 times a day. My memory has been
destroyed , I have constant tremors, head bobbing, eyes twitching, my gait is all off, social anxiety, & severe depression. I went to a neurologist and she said I hav developed Lewy Bodies Dementia now. I want to get off the Xanax, but I have tried countless times and countless ways, and it was disastrous. I then asked my doctor to help me get off of it and he fired me as a patient!! Life is really difficult because I use to be so full of life and happy and energetic. Now I’m always depressed, lethargic and just “numb” to living. It all started with a doctor prescribing Xanax due to a death if my best friend and I was so depressed . Also, I have dealt with my husbands severe PRSD from Vietnam Nam as a gunner who was in a mid air collision and was the only survivor on the helicopter. It’s been a 46 year uphill battle.
Michele, i hope your still hanging in there. I can relate, Xanax & benzos are the some of the worst drugs ever created & I had no idea the hell that wld become my life after taking them. Lets stay strong & know we are not alone in this struggle but we will beat it!!
Can I ask how many mg you we’re taking? I was prescribed Klonopin to get off Ativan about 12 or so years ago. I was also prescribed Baclofen and 3200 mg of gabapentin for nerve damage. I’m off the Baclofen, I’ve reduced the gabapentin to 1500 mg and I tapered to 2 mg of klonopin. Just lowering it 0.8 5 days ago and I am dizzy, have nightmares, sweats, I’m emotional, don’t feel like I’m even here, I want to hide from everyone… I may have a tooth problem so made a dentist appt for what may not even exist. My heart feels like it’s working overtime. I’m in my 60’s. Am I nuts? Is something not right with me? I had also been prescribed Zoloft which I weaned off of a few years ago, and still have depression from it. I’m confused I guess on what’s causing these symptoms. Thank you for reading this.
Thank you so much for taking the time to create this forum. I could relate to your situation as I had a similar situation. I was prescribed Ativan by a psychiatrist in 2009 after I began to experience panic attacks following a hysterectomy. I was not told about any risk of addiction. In fact when I asked, I was told that it wasn’t addictive because I was taking a low dose & I was taking Ativan vs. Zanax. I was also never told that I shouldn’t remain on Ativan longer than 2-4 weeks.
I remained on Ativan for 10 years. My life became a nightmare. I would try to not take Ativan during the day but my anxiety would escalate horribly. My psychiatrist & I determined that my anxiety was getting worse. It wasn’t until later that I learned I had because dependent & my body was going through withdrawal when I missed a dose.
In March 2013, I began to experience GI problems. I went from specialist to specialist & had numerous tests & procedures performed. Dr.’s couldn’t find anything organically wrong with me. I was told that a great deal of my problems were caused by my anxiety & that if I could get my anxiety under control my symptoms would improve.
As my anxiety worsened, I found that 1mg of Ativan wasn’t helping. In consultation with my psychiatrist, I began to take 2 mugs of Ativan. My psychiatrist & I determined that the 1 mg was no longer working because my anxiety was worsening. I know now it was because I had developed a tolerance. I again asked my psychiatrist if Ativan was addictive & re reiterated that it wasn’t because of the low dose I was on.
As my physical & mental health deteriorated, I began to get severely depressed. By this point I was taking 1-2 mgs of Ativan 2 – 3 times during the day & 2 mgs of Ativan at bedtime. My depression worsened & I voluntarily admitted myself to the VA hospital.
My inpatient psychiatrist told me that the VA doesn’t prescribe Benzodiazapenes because of their addictive nature. She recommended that I go through detox. She did tell me the risk of going through detox & explained the protocol that would be used. She said tapering wasn’t an option because I was only taking 1 mg tablets. She never discussed substituting the Ativan with another Benzo during detox. I was given Gabapentin & Quetiapine to help with the withdrawal symptoms & my anxiety.
So after 10 years of taking Ativan, I was taken off it cold turkey. Even though I was closely monitored, going through detox was a nightmare. I had hallucinations & started acting out. I was given medication as needed. It took the edge off but didn’t eliminate the physical agitation & anxiety After the 5 days of acute withdrawal my symptoms abated somewhat.
It has been 78 days since my last Ativan. They changed my antidepressant while I was in the hospital. Despite my continued symptoms I no longer feel hopeless or depressed which is huge for me. The severity of my symptoms has significantly reduced. I’m no longer immobilized by agitation & panic. I’m able to leave my house & socialize. However I’m nowhere near back to 100%. I’m easily overwhelmed, my mind has trouble keeping up in conversations because I forget things, I seem to be always tired & on edge & it’s hard for me to get motivated to do things.
I’m also trying to titrate off the Quetiapine. I gave my consent in the hospital to take it. However I was in such a fog I didn’t fully understand the risk of taking an antipsychotic. I have gone from 200 mg to125 mg. I don’t know if my symptoms are caused by protracted withdrawal or from decreasing the Quetiapine. There isn’t a lot of research on going off of Benzodiazepines after 10 years of daily use.
Interestingly my GI problems stopped immediately once I stopped taking Ativan. I was throwing up 1-2 times every day. At least 1-2 days each week I was too nauseous to get out of bed. I haven’t thrown up once since I stopped Ativan. I can eat foods I haven’t been able t eat for years. In terms of GI problems, I feel like I have my life back.
I take Hydroxyzine as needed & at bedtime. The Hydroxyzine helps take the edge off but it doesn’t make the anxiety go away like Ativan did. I am learning how to cope without emotions without taking a pill. Idid. For example it’s been 10 years since I have had a medical procedure, taken a commercial flight or had a panic attack with Ativan. It’s very hard. However I will do it because I never want to become addicted & go through detox again.
If I knew how addictive Benzodiazepines were I never would have taken them. I pray that over time my symptoms continue to lessen. I hope my experience helps others.
Sorry to hear, did Gabapentin work?
I wish i could go to detox and get off this shlt. I think i could deal with 5 days of hell so long as i was monitored and given drugs to take the edge off and knew it would get better. Unfortunately i am caring for my 93 year old grandfather by myself w/o any help so i cannot be gone for days or months and i cannot let my brain become fcked up. I have been tapering very slowly for the pat month and so far so good. Down 10% and besides the ringing in my ears, muscle and abdomen pain (usually about 18-20 hrs after my last dose) i havent had any of the insane withdrawals ive had in the past when tapering too fast.
Thank you for the time you spent informing others about the dangers of these drugs. Thank you for your time.
What about someone that listened to their doctor and discontinued 0.8-0.5 mg clonazepam cold turkey?
It precipitated major withdrawals, bodily symptoms, and cognitive issues.
2~ years later and I feel a lot better, but it cost me everything. I feel stupid now, at least partially from atrophy, and yet I know if I had done it this way I’d be in a much better place.
What evidence is there to suggest I’ll regain my cognitive function with continued abstinence?
I have no interest in going back, but I’m looking for (empirically supported) hope for my brain and body.
I want to think clearly again and involve myself with the things I used to.
Wow! JC your article is almost an exact replica of my experience. I too was given Ativan and was given no warning of side effects and dependence. Brad Verrets article was of particular interest as I was given 3 rounds of sinus infection anti biotic as an early interdose withdrawl symptom masked an infection. Was also taking a prescription nsaid at the time. Taper ended 3 years ago and still have the perephial neuropathy in my feet and legs. Ironically I am headed to Mayo Clinic neurology next week for it. Will be taking a copy of Mr Verrets article with to see if they are aware. Would love to have a lengthy conversation with you and share the full story. Hope you are well.
I’m a mother of 7 beautiful children and a wife, whose life has been utterly and completely ruined by klonopin daily usage to “bridge the gap” of trying different antidepressants last year. When I realized the klonopin was part of why I was so depressed and not getting better, I tapered my dosage from approximately 2 mg per night to .5 (over about 4 months) and while it was tough, it wasn’t horrendous – increase in anxiety, restlessness that would return to baseline afterwards. I held the dose at the instruction of my doctor due to some medical issues (which ended up being somewhat related to the klonopin and w/d as it turns out)…..what followed has been horrendous, an absolute nightmare that I had no idea was possible. I held at .5 mg for about 5 months before I started feeling manic, followed by new physical and mental symptoms that came out of nowhere – many of which you described above and more. I had no idea that by holding, I would be sucked into a severe acute tolerance withdrawal situation. I knew that I would need to slowly taper the remaining .5 mg but had no idea that I could experience severe hyperacusis, morning cortisol spikes, burning skin, electrocution feelings, tinnitus, agoraphobia, crying spells, tremors, severe hair loss, a feeling of rage (plus 30 other symptoms) while on this stuff. Trying to determine how to taper this remaining .5 mg at a “tolerable” rate and finding a supportive doctor has also been a nightmare. Small percentage reductions now destabilize me, as do many meds and supplements. I am so hypersensitive to everything now. I tried a small amount of Valium but got more side effects and knew I couldn’t cross over – that it would just destabilize me further. I’m now reducing at .003 mg per day or 3 of 5 days (dry cutting and weighing .125 mg ODTs since I couldn’t adjust to a liquid titration). I’m doing ok, but can feel the symptoms starting to increase a bit and so now, I’m trying to determine if I’m going too fast – I need to stay at a level that is “safe” but I know there’s no true healing until off this destructive medication- I’m already in acute according to some of the experts…..I’m stuck between two worlds. I’ve experienced severe depression/anxiety in my life but this is a HELL I never could have imagined. Inhumane suffering, physically and mentally. As the sole breadwinner of my family, I’ve had to give up my career to stay home (with noise intolerance and overstimulation, living in a home with 7 kids, that’s pretty difficult). I just want to be a mother to my children, a wife and this has stolen my life and I’m SO afraid that I won’t get off and heal. I am, however, not going to be silent. I don’t want this to happen to anyone else. It’s SO wrong – I was never warned about these dangers. I knew there was an “addictive” nature to the drug but thought as long as you didn’t have an addictive personality and tapered off, you would be fine. WRONG. In addition, I never intended to be on it daily as long as I was. I pray for all those that are suffering from this atrocity.
Hi there, I will send the shortened versions. You might want to have a look at these links. Firstly calculate the diazepam equivalent for your Klonopin ( Clonazepam ) dose of 0.8 or whatever you’re on, then convert it to equivalent diazepam. Then Ashton method to taper see schedules usually about 1mg per 1/2 weeks off diazepam ( although Prof Ashton ( rip ) goes
into the other benzos and possible withdrawal schedules ), then as the dose drops, it gets to be a smaller percentage as that’s what counts and helps the taper and subsequent severity of the withdrawal apparently. I wish I’d done things this way, my GP tapered ridiculously fast and now won’t reinstate so I’m stuck in bad withdrawal. I don’t know what diazepam dose you tried but longer half-life is supposed to help 30 hours approx as opposed to a lot shorter with Klonopin. https://benzo.org.uk/manual/ and https://clincalc.com/Benzodiazepine/
I don’t know if you’ll get this. I am a mother to 3 beautiful kiddos and pregnant with my 4th. I have tapered off 1 mg of klonopin in one month and had to stop because it’s been HORRENDOUS. I’m down to .5 mg. I feel so lost and alone, especially as a mother staying home trying to just survive because there’s so much physical pain and panic and much more. If you get this please reach out. I’d love to connect with another mother.
My personal opinion is that Ms. Curle is too generous with the medical community as a whole. I expect a majority of those ages 50-+ are fully aware of the addictive nature of these benzos, and simply want to get as many “captive patients” as possible. Not to mention kick-backs from “Big Pharma” I hope the day will come when cash-settlements to their victims, and perhaps criminal conspiracy convictions will be brought against many of those responsible for the misery they have caused. so many.
When I tell people it’s a psychiatrist who actually cold turkey detoxed me and then tried forcing me off benzodiazepines, they’re often in shock. In the six years I saw her, she readily dispensed daily Xanax prescriptions to me, even doubling to tripling my dose. I suppose it’s generally assumed a psychiatrist would try to keep someone prisoner to the medication to keep the patient, among other factors.
I’m sorry I began chronic use of benzodiazepines, not because of what my life was like on them (and I do sympathize with people who suffered on them), but because living without them seems so unbearable. I’m one of those individuals who tolerated being on them, once dependent, but can’t seem to find peace without them.
After my horrific CD detox, my psychiatrist did reinstate me on lower doses of various benzodiazepines for nearly a year afterward. As my dose is reduced more drastically, I’m reaching for things like Benadryl or anything OTC that can help these horrific effects of anxiety. People say to exercise and meditate. Being confined to a wheelchair seems to make jumping into activity much more difficult and my mind races too much for me to meditate. In fact, I do the opposite; I’m constantly on Twitter or something that is fast-paced to constantly keep my mind stimulated on something else. If I try to do something more relaxing, like viewing a film, I have to be in the right head space or I simply can’t concentrate and slow down at all.
A neurologist took over my care because I’m supposing she’s willing to wean me off slower, plus add things to my regimen that may help me: Baclofen, Zanaflex, or even medicinal marijuana. I won’t lie, ideally, I’d find a doctor to keep me on them on doses that keep me being myself.
I will confess I withdrew from 10mg of Valium in a month’s time earlier this year. I spent nearly a month entirely off. In that phase, anxiety was still an issue, but it was mostly feeling ill and catatonic that lead me to begin retaking the Valium again. With one dose, 2.5mg, I was amazed by how normal I felt again. I was me! My psychiatrist wasn’t pleased, despite the fact that with my rapid withdrawal, I had nearly an entire bottle of Valium left, plus a refill on it. I think giving into temptation and going back was inevitable with that fact: I was confined to bed, I didn’t want to do anything. I’d spend my days trying to pass the time on Twitter just reading tweet after tweet or watching a film I’d already seen many times for comfort. I’d spend those times waiting in desperation for when it was time to sleep again because I hated being awake; I hate existing.
My ideal goal:
– Quit creating new dependents on benzodiazepines.
– Don’t be so barbaric as to force those dependent off of them because it’s so life-altering.
Were you able to come completely off or did you remain on them? I’m experiencing severe withdrawal and I’m wondering if staying on, in the long run, will be the easiest and best route to take.
I’m presently still on them (5mg of Valium). I wish staying on was an option freely provided to the compliant patient made dependent by doctors mis-prescribing, but it’s not that easy as it’s a controlled substance. Doctors can literally create dependents, make executive decisions to not continue to prescribe, and leave you picking up the pieces of a shattered life; those doctors get to move on to their next patient, not giving a second thought about you.
Yup, totally agree. The companies that make these drugs are publicly traded corporations. When a company is traded on the stock market they must please stock holders, they do this by creating high revenue year after year or giving out dividends.
Having dependent lifetime customers is a dream for any corporation. These companies know what they’re doing and I believe many of the doctors do too.
No better than crack dealers in my opinion and I don’t want anymore of what they’re selling.
Also believe that modern life is not natural at all and causes of discontentment and “mental illness” because it is unnatural. Pills are prescribed to keep this unnatural modern life alive, without drugged up nations people would realize where the discontentment came from and revolts would occur as people would realize that they aren’t the only ones that feel this way.
Cubicles, computer screens, lack of community, and Netflix do not create contentment.
I agree. I am 53 years old and was prescribed xanax at the age of 23, I have severe panic disorder and social anxiety. I was on .5 3x daily. I was put on pain meds recently and the psy doc just took me off xanax cold turkey! I have 3 jobs due to this and had every symptom listed above + more. I have never been this scared ! I pray every day to make it thru the day. Big Pharm and the prescibors should be sued and lose their jobs !
I meant to state that I have lost 4 jobs in 4 months due took the xanax withdrawal syndrome.
Yes cash settlements. Im in. Been suffering since 2007 when i was diagnosed wuth insomnia and given Ativan the klonapin then i asked to be switched to valium. Cannit get down from 10mg to 9mg without getting sick and getting dry eye.
I’m 60. After 22 years of taking Klonopin I had no clue of it’s addictive nature until I didn’t believe my Med NP after telling me that I should worry about developing Alzheimer’s. My 2mg of Klonopin only med that kept my severe anxiety managed along with other health issues made worse by anxiety. She didn’t review my meds and I did not ask her about lowering my dosage. Took it upon myself. No clue about withdrawal. Used all the wrong key words in Google search. Catastrophic mistake #2. Tapered on my own slowly until 8 months later I crashed in a heap of anxiety onto the floor. Now on 3.5mg and tapering is in my near future. As a long time user and a previous failed taper user protracted syndrome just about assured. Petrified as I feel my life is over in the most excruciating manner I could possibly imagine. . All because I had no clue of addictive nature. I thought I could just take a little less if I didn’t feel well go back to original dose. Klonopin was a miracle med for me for 22 years. My life was almost normal.No side tolerance, or side effects. I don’t have a clue how I will make it through. I’m sure I’ve ruined what’s left of my life. Thinking nursing home is much closer than I thought due to this horrendous mistake I have made. I’ve told my partner not to hesitate to put me in a nursing home. I’ll never be my 2mg self again. Devastated doesn’t begin to describe it. All my fault on every level. Should have just taken my prescription as I had for 22 years.
Thank you JC and all the volunteers of this coalition.
I too had similar experience from
Lorazapam ( Ativan) but was so sick
with withdrawal tolerance but on just half the prescribed dose, when a therapist who did Neurofeedback said you can go off that medicine because you are doing Neurofeedback.
I did almost die those first 3 months, calling Betty Ford Clinic, where a MD said ,” You are out of the woods, there is nothing we could do but give you benadryl then phentynol..which would require further withdrawl”
I talked to all on Benzo Buddies, MDs on both coasts but Only a few understood. These few had no help however. And yes, many therapists later with lame diagnosises of PTSD, etc were eating up thousands of dollars.
Now, I am 14 months recovered, almost lost my husband and lost froends, because they did not believe it was a drug damaging chemical inbalance from the prescription. That internet seeze,”
Most people are over it in 10 days. “
So those around me, slipped away.
I have scheduled an appointment with a research doc at Stanford to hopefully get this horror more puplic.
JC
I am curious. How much more ativan have you got to go? When do you expect to complete the process? These drugs are horrible.
I just switched to Valium this week. I takes a while for our bodies to acclimate to the new benzo. I was bedridden before with so many symptoms. And hope this will ease some of the suffering. I am waking with night terrors and all the symptoms that go along with it. I pray the Tranxene will help you. .
Klonopin comes in a .125 mg ODT which is what I’m using but when you are in acute tolerance withdrawal, I am not sure it matters what benzo you are withdrawing from – I don’t know? Glad for you that it wasn’t a difficult cross and that you are sleeping better.
JC
I’m glad you had a good crossover and hope that it continues so that you can slowly taper off and be done with this.
I finally made the switch to Valium this week and although not complete with my crossover and not really sure if this was the way to go I am going to stay on this course and hope I can continue to taper from Valium. I was low in my Ativan dose and it had become unbearable.
I’m so sorry for all of us going through this dark time and pray that with time we will all be better.
ScaredMother, I hope the taper from the klonipan
Will get to a tolerable point for you as well. I know how awful this hell that we have entered into is. You deserve to be with your family. Sending love and strength to all the benzo warriors.
Mel, I wish you well also in your Valium taper, that things can ease up enough so that you can continue on. “Tolerable” is a difficult word when things are so bad, eh? The bad symptoms rotate but this week, it’s the severe hyperacusis, tinnitus and ear pain that are really difficult – painful for anyone but especially difficult with 7 kids in the house.
I just want to thank everyone who is telling their story. I can in some way or another relate to everyone. I stopped 6 mg. of Ativan per day, 800 mg. of serequel per night and 300 mg. of trazadone per night cold turkey within one week. The worst mistake of my life. It has been about 5 weeks since. I am experiencing every symptom imaginable to some degree or another. This debate is so complex and one moment I see it one way and another moment I see it yet this way. The bottom line though is all that are involved, whether it be patients, physicians, family, friends, government and the list can go on must be informed and educated in every way possible. It starts with the patient and the physician. We must keep telling are stories and informing each other the best way we possibly can. All of you are survivors and I just send out my thoughts and prayers that each of you keep fighting. You are not alone and thank you for reassuring me that I am not either.
Has there been any serious consideration of a class action lawsuit? I’m amazed at the damage done to people. My relative was prescribed Xanax for insomina. She’s not anxious. She was on another benzo, too. two and a half years. She has autoimmune disorders in addition. Her doctor withdrew her from 2 benzos in a matter of weeks. She followed her instructions and has been suffering withdrawal for three months. I’m so angry at the doctors who prescribed in the first place–she doesn’t have anxiety. And those who kept refilling. Then the one who “tapered” her very fast. She’s barely able to work some days. She was so glad to get a diagnosis for her autoimmune disorders, she trusted the doctors and filled the prescriptions. She says the medical system has failed her. There needs to be a huge lawsuit.
I would love restitution. My medicine was a generic and you can’t due if injured by a generic. Also there’s statute of limitations. By the time we find out it’s the drug it’s too late to file. Plus they will always argue other causes like mental illness or physical illness. There is truly no justice in this world for benzo victims. I was injured by ativan.
You must start guzzling Pink Himalayan Salt water all day & Night to balance the Adrenaline Anxiety Fear !
I am currently weaning off 5 mg of valium by my Psychiatrist because I was on klonopin
for years.I am experiencing interdose withdrawal.My symptoms are stomach pain and gas.
The occurance of this is around the same time each day.I know its a small dose to deal with
but the intensity of this is almost intolerable for a a short time.I found the best way to deal
with this is too drink cold water and lay down until it subsides.So due to drug sensitivity,
even low doses can effect some patients.Also any underlying conditions should be ruled
out to really understand the the long range effects of this drug.Hopefully more awareness
is needed to combat further addiction that i hope more doctors would understand.
I was wondering if anyone else still has withdrawals after 8 months of being fully off their benzo doses? I took Ativan at around 1mg for a year and a half and did a micro taper for two months and have been fully off of Ativan for 8 months now. So much has gotten better but I still have ally of mental symptoms going on. Can anyone relate?
From my experience with major tranquilizers antipsychotics 3 years, then minor tranquilizer xanax/klonopin 2 years. sent me to hell for a year, because of cold turkey.
It took a year, and half to get back normally!
So you will be back in 1year i guess, because my case was harder with other medications, and drugs as well.
2 years you will be on point!
3 years your brain will be mastered again!
5 years is the maximum, and you will be back again, even from the highest dosage, of the strongest ones!
Speaking as a victim of many drug withdrawals. especially the tranquilizers, which erase your mind, you can build it back. Just use every natural methods, and jogging, workout, do your thing! Meditate!
Yes, I am tapering now and meditation has been a huge help. I have been on these things over 30 years. I do not think my CNS will ever be the same again. God help me!
How are you getting off? I have been on ativanfor18 years.
Hi John I’m almost 23 months completely off and bedridden in the most severe cruel unbearable pain and anxiety depression fear and looping thoughts of SI , I don’t find many who have the crippling pain I do , can we all recover from the nightmare of wd 😖😩😭 I’ve thought about reinstating my symptoms are so cruel, I can’t sit down without excruciating pain or lay down without excruciating pain, wear clothes or shower without excruciating pain and sleep is non existent as is silence, what were your symptoms, thank you
Your story is mine. I have been bedridden for 2 years because of tolerance withdrawal and cold turkey from clonazepam taken daily as prescribed. Are you any better?
today is jan 2021 exact 1 yr i began ashton #5 from 1.5 clonopin-my current dose is around 2-3 mg valium i cant stand up w/out severediseuilbrium–i hae severe tremor of the rt handand myft curl underim afraid im going to seiz cos my tremor is so big-this crosover madeworse
Why did you go cold turkey? Did your physician recommend?
Yes I still have a very tight chest and throat tightness. Very scared. In my 9 th month Really could use a friend to talk to
Hello,
Debbie is my mom. I have watched her suffer for 9 months from detoxing from Xanax. She is mostly in bed, scared, and is hopeless towards what her future holds. Most days she feels she cannot breathe, worsens if she stands. Feels spasm sensations in her chest and throat. If anyone can talk to her…. maybe give her some hope back, it would be more than greatly appreciated. ❤️🙏
Love,
Debbies Daughter – Jamie
Hi Debbie (+ daughter). Have you checked out benzo buddies? You can fund me there : Believe2018
Wouks mive to hear from you.
I am also in my 8th month of benzo (Xanax for 15 years) withdraw with ongoing, constant throat and neck concerns.
Be well.
Hope to hear from you.
Hi Debbie / Jamie’s mom. You’re not alone. Sometimes having someone to just know you’re struggling, to distract you, to hold your hand can help. You must be a strong person to endure this. Resilient. I’m impressed with you. And you’re healing. Every day a little. You’ve probably heard it all as to things you could try. If you can tolerate anything completely natural: magnesium is good for sleep and calm-low dose so it doesn’t upset your stomach; melatonin 1.5 mgs in plain cherry juice also for sleep. Not sure if your age but hormonal imbalances can cause so much trouble. Bio identical hormone therapy is amazing. Just some thoughts to take or leave. You may need a naturopathic doctor to give clarity on any of this. I wasn’t on Xanax, but Clonazepam. Still trying to get off it. Please keep reaching out for help, outside of the usual medical type. I believe you can heal.
Your process is not complete yet. I believe it is not possible to cut the withdrawal time to less than a year. No matter what. Do hang in there. There should be less and less symptoms.
Rose, yes I can relate. I was given Ativan for misdiagnosed tickborne illnesses and the anxiety resulting from that. That took over two decades before it was diagnosed properly by a nurse who happen to have the same stuff. I went to a facility to get off of Ativan at 3.5 mg “slowly.” I know realize that that certainly was not slow enough. I am going through horrible withdrawal symptoms with insomnia being One of the worst. I unfortunately have to take something for sleep, but it is not helping very much and I don’t want issues from that either. I would love to hear if anyone has suggestions! Thank you.
I found a facebook page to be quite helpful for microtapering instructions and share it frequently. The link is at the bottom of this post.
Sadly even a slow taper won’t help everyone, but it’s the only tool I have to work with. I’m in my 3rd year of tapering at age 70. I projected out 5 more years before I will be finished but I can function most days quite well except that I am disabled with no help at home as I live alone.
I decided to come off in January 2016 after my 4th CT by a doctor in a new city I moved to. I was CTd by my original prescriber after one year…he was a sleep medicine specialist. My GP knew the dangers of CT so he took over writing the prescriptions…but in 2009 he was not practicing and another doctor CTd me and I nearly died as all organs were failing. A friend found me a doctor to reinstate me within 4 weeks and it took 3 months to stabilize. My new GP was out of the office a few months and his nurse CTd me…I was so ill at 4 weeks I could not take care of myself and I found a doctor who reinstated me at half the dose. I never really stabilized and eventually was prescribed my original dose of Clonazepam. It just continued like that until my trusted GP returned to practice and took over my care 100%. I have taught him how to microtaper using the ethanol method. I explained how I mix my solution to my pharmacist and he was amazed and approved, saying “that will work.” My doctor and I did not think I would ever be able to get off this medication, that it was a life sentence. I’m his only benzo patient. He knows the danger of a rapid withdrawal and let’s me go at my own pace. I have many health problems but not all are benzo related and I must go very slow in my taper, at times 1% per month…however I tapered off the first half (1 mg) in 5 months in 2016. I’m forever grateful to a woman in a facebook group who taught me the basics of microtaper. I’ve reduced my dose from 2 mg to 0.34 mg. I hold my taper 4 weeks during times I need surgeries which is about twice a year. I have developed chronic bladder inflammation, called IC or CC due to withdrawal and have had tumors removed. I do believe that is benzo related as I noticed many ppl in withdrawal groups also had the condition.
Thank you for this page and all you do. Especially the info about fluoroquinolones…it’s a real life saver. I wish all doctors were as understanding as my GP and I hope he doesn’t retire as long as I’m alive. No other doctor seems to understand the dangers of benzos & withdrawal.
https://www.facebook.com/benzotaper/
I am so sorry you were cold-turkeyed four times, that’s just awful! I’m glad you have an understanding doctor, that is truly what every one of us needs during these withdrawals. I am only 25 but almost ended my life last year when a doctor rapid tapered me then told me my symptoms were either all in my head or that I was just pretending and drug-seeking. I pray we will all get through this!
I started taking ativan 5 months ago. My mother passed I was taking .5mg once every other day. Then I had a weird thing happen so Increased to once a day for the last 3 weeks. I’m having tolerance and withdraw symptoms with my .5mg the doctors keep telling me to increase my dose but I just cant. I’m paranoid cant sleep or eat. What do I need to do.
How could I read all of your stories without tears!!!
I get encouraged so very much by all your struggles and success stories. I’ve gone through hell so many times, and my young days were shadowed by this evil med – BENZO!
I am 63 years old. I was on Xanax and Paxil for 10 years for major depressive disorder and anxiety disorder. In 2015, my Psy. Dr. switched to Clonazepam, 3mg during my 5th hospitalization for MDD, anxiety disorder and panic attacks in 2015.
On top of Clonazepam, 7 different meds were added every time I saw new Psychiatrist because I either moved or Psy. MD retired. My brain was always foggy, lethargic, had to sleep 10-12 hours a day including 2 hour nap without fail. I had 4 auto accidents for the last 10 years. I gained 22 lbs.
I, myself started digging into some articles about the side effects of all my meds. OMG! High blood pressure, cholesterol, triglyceride, A1C problems I had – all the poisonous meds I’ve been taking. I was very slim and healthy until I started these meds.
As years go by, I got weaker, depression got worse, insomnia, memory loss, disorientation, hair loss, excessive eating, ……
Then I met my current Psy. Dr. who strongly advised me to get off meds after 4 different sessions of treatments of Transcranial Magnetic Stimulation(lasted about 6 months). THIS WAS A GAME CHANGER!!!! Believe it or not, none of my previous Psychiatrists, Psychologists recommended it to me. One of them did not even know that such thing exists. I found TMS on my own after I digged into the answer to my ongoing question of “Am I going to have to live like this for the rest of life? I feel I will not be able to.” I was able to manage getting off all meds, one at a time, except Zoloft 100 mg, and Clonazepam down to 1mg. TMS made it happen without severe withdrawal symtoms. Or reduction of Clonazepam was masked by other meds.
However, now it is the time for real game. Doing Water titration by Ashton Method- 2 ml reduction of .375 mg Clonazepam diluted in 250 ml water, every 3 days in the morning, leaving .5mg for evening for sleep. I am now down to .707 mg per day.
I am constantly feeling like I am on a floating boat.
numbness, weird sensations –
Objects feel bigger or smaller than normal
i.e., food such as noodles, pasta, rice feel smaller
Some objects feel bigger and heavier, like mugs, dishes, clothes
Cars look too small.
I can not clearly say what time I fell asleep at night, whether I was asleep or not throughout the night.
Sometimes I hear things ‘hi!, beeping sound from microwave!’ which was not real! Also feel that my throat got swollen, often get choked with a sip of water.
I am positive hoping that these are all WDs and will go away. Did anyone have these experiences?
I am looking forwards to your replies.
Please help me I m 8 months taking benzo diazepam 5 more attivan 2 I have a high tolerance and as soon as I try to cut off the symptoms are so bad especially inner agitation fears and storing suicidal feelings and even homicidal ideation all started with prescribed antidepressants who gave me severe acatisia that the Dr tried to keep down with benzo, after they said I have antidepressants induced bipolar tough i never had highs so prescribed meds for. Bipolar making me. Sleepy for all day long I ve lost. My job my friends my inner peace my life my joy and I m a single mom and have an old. Mom and is painful for me I wish I could get better for my kids they need me please help me
JC I hear you!! Mine has been 40 years!
So I’m on a taper from 6.0 now at 4.0 of Xanax .im almost 60 days into it and the side effects are killing me, I go see my doctor tomorrow? I think I’m going too fast,
@David, yes you are going too fast. Google benzobuddies and join that forum. They can be of tremendous assistance. I have been on these things for nearly 30 years. Xanax is a high potency benzo. It and klonopin can be particularly hard to direct taper off dry cutting. The members at benzobuddies can help you design a taper plan to minimize the intolerable SX’s as much as possible.
Has anyone tried to liquid Titrate off titrate off Xanax
I am so scared. I have been on 2mg of klonopin for years. Not once did a doctor tell me about any of this. I don’t know what to do. I don’t think I’m strong enough to go through a withdrawal. If someone would have told me this could happen I never would have taken pill one. I only started learning about this a few weeks ago from Reddit of all places. I don’t know what to do. I am so very scared. Thank you for trying to help people… like REALLY help.
Try not to be too scared. You’re going to be ok. There are far deeper, trickier benzodiazepine hell’s than 2mg of clonazepam. Just remember: you’re going to be ok.
Tina, I spent 11 months coming off 4mg of Clonazepam. Started April 23, 2018 and last dose was March 14,2019. I used the liquid titration with milk. Worked great! Sleep is the biggest issue but I have read everything there is, I now use a CPAP machine(which was probably why I didn’t sleep and that causes panic depression) when I sleep days are very good. I liked beer and would drink a couple on The weekend….wow come Tuesday or Wednesday and it was hell so I don’t drink now…duh! You can do this, I posted about the liquid titration on Benzobuddies so go look there…others have posted as well
Good Luck , it’s not that bad but you will have tough days after 3 months I had some great days and they continue to happen even after a 20 yr Clonazepam script
Dear Elizabeth,
First of all, I am so sorry x I too, suffer from the same. I try to stay positive and take the good days when they come.I found friends fell by the wayside as usually I look fine, so they don’t understand what’s going on inside. I’ve tried to find others in my area suffering with this too for support- but nothing. It’s something I’m resigned to now and just take the good with the bad. Haven’t got any really helpful advise for you, just wanted to let you know you’re not alone x
I took Benzos nightly for 30 years. Over time, especially in the last 15 years I took them, my health began to go downhill. I felt weak, tired and had a lot of unexplainable aches and pains. I saw several neurologists and all told me I probably had fibromyalgia, maybe M.S., mabe CFS and possibly Patrkinsons. In the last 4 years on benzos, my weight dropped to 85 lbs. But the worst thing was I began falling for no reason. I would just go down. I broke a bone in my neck, and had surgery to repair this. Then I fractured my femur and blew apart a knee replacement. I was told I could lose that leg. The pain was so extreme I fainted. Luckily a good surgeon saved the leg but my recovery was very long. OI used a walker for several years and then used a cane. About a month after the surgery . on Levaquin IV and then had the only panic attack of my life. I know know that those antibiotics threw me into withdrawal. My doctors did NOT know this. Not long after that fall, I fell yet again and broke my hip.
Fast forward: my PMD finally began to think the benzos were causing my problems so he called ther psych doc who wrote my prescriptions. I was abruptly cut off from Klonapin 6 mgs, Ambien 10 mgs and two antidepressants. Within a day I began having terrible withdrawal symptoms. My withdrawal was epic and lasted FAR longer than I expected. About 4 months into it, I discovered BenzoBuddies. That was my sole support and they were extremely helpful. It was on BB that I began to understand that I DID NOT have Fibro, CFS, or any other odd disease. It was ALL caused by benzos. I was in tolerance withdrawal for years, and NONE of my physicians knew that this exists. My withdrawal went on for over 3 years and after that, I STILL had WD symptoms. I learned over time how to deal with them, thanks to what I learned on BB and other sources. I believe I am the perfect example of the severe harm that can happen if you take benzos. I am now 69 years old, and healthier than I have been in perhaps 20 years.
Your story is close to mine as far as chronic diseases and symptoms throughout years. I am on benzo medications for almost 40 years!! I was put on benzo medication at age 19 for nerve damage pain. I had no Anxiety throughout my life until months ago attempts to get off benzo medications. During taper I never stabilized Period! No Windows. All Waves. I finally got off and each day off my symptoms got worse and worse. 11 months completely off and I was in sucidal thoughts very intense and I knew I would go through with it! I had severe electrocuted symptoms throughout my entire body including my vagina, brain zapping and electric shocks throughout my entire body day and night! I have a benzo belly which looks like I’m 9 months pregnant with twins and the pressure is unbearable. My breast went up to 2- sizes and I cannot wear a bra because of sensitive breast and pushing pressure in my ribcage takes my breath away and some. I have so many symptoms it’s insane! I went to my Neurologist and flat out told her she needed to reinstate me back on Xanax immediately because I was seriously going to kill Myself because of the severity of withdrawaling symptoms. She would only give me half of the medication prior to taper and the only symptoms that subsided was Sucide mode and brain zapping along with extreme body shocks. But severe acute symptoms are still strong and my body is swollen. The Ashton Manual States If in acute withdrawals and reinstatement should be done right after taper not wait. For it may not work also many people need to go back on original dose prior to taper or higher dose to stabilize then once stabilized wait and go to a super slow taper method. Some patients are permanently damaged by benzo medications and I could possibly fall into that percentage of patients since on for 39 plus years taken Multiple times daily dose. I’m alone and scared without a willing doctor to read print out of Ashton Manual and to put me back on Xanax at the proper dose to stabilize my body and soul! All doctors are clueless and I have so many mri, labs, brain ultrasound ect all abnormal and Shows on scans abdominal distended which Gastro doctor can’t figure out why or listening to what I am saying, Endoscopy done showing slowing of of my entire Gastro System Which another I don’t know what is happening. My list goes on and on! And so does the Torturous day and night! How long can one person go on like this without anyone willing to help me and read up on benzo patients nightmares and HELL!
Gale, I want you to look into a botanical called Kratom. It is a legal tree leaf that is harvested in the far east. It is legal in the U.S. and in many countries. It has literally saved my life. It is in the coffee family of plants. It does attach to the brains opioid receptors as does coffee and mother’s milk… It is addictive much the way coffee is but not even close to the addictive qualities of benzos.
I drink 3 cups of Kratom tea per day and it makes my life bearable as I have reached tolerance levels on my Valium a long while ago. I am about to embark on a microtaper of Valium and this botanical might be the one thing that helps me get off of that hideous drug. You must research suppliers and the pharmaceutical companies are try to make it difficult to get this tea. I have found The Kratom Connection.com to be very reputable with a well screened healthy product. I use this product Green Maeng Da Kratom Powder. I take two to three teaspoons of the powder as hot tea every day and it has made my life bearable again. Try a small amount and see if it does not turn your life around. God Bless.
Robert
robert@moonstones.com
I came off of xanax in Oct of 2018. Has anyone had trouble with chest and throat tightness where its hard to breath?
Debbie, I guess you could describe mine as chest tightness, although it just feels as though my bra is too tight sometimes, and I finally have to unhook it. That helps me to breath more easily.
I’ve been on up to 4mg a day at one point in 2016.
It seemed to work much better then. Been on it at usually 2-3 mg. Now on 2, but that was because of a recent 4 day stay at a psych unit. I have a VERY big fear of being alone. I also have MECFS, Fibro and Dysautonomia for almost 30 years which no psychiatrist or medical dr understands how sensitive we are to meds. I had a very bad relapse in June and have been bedbound and scared that I’m dying. Hired a lady that I cannot afford to come stay with me, fix meals etc, but I cannot afford her very long. Very isolated; one friend that I’ve had for years, now will not help me. Have had anxiety and panic disorder for years, but now it’s constant. My daughter wants me to go bk to a psych unit and I’ve tried, but it freaks me out. Have bad insomnia now..slept 45 minutes last night…Ambien seems to have stopped working or all my meds seem to be doing the opposite. Never been able to tolerate anti-depressants, cause more panic. The Klonopin I’ve been on for 9 years, before that xanax small dose, and Valium at some point. I know I’m rambling here. Very surprised I can even type this much. Since I seem to have lost the ability to care for myself. WHAT DO I DO?
This could have been written by me!
I’m 58 years old and was put on benzo medications since 19 years old for nerve pain. I recently tried to get off Xanax and the withdrawals were the bottom pit of Hell itself! I was completely tapered off and had zero windows the entire taper. I was completely off for 11 months and my withdrawals intensified every day. I had such severe electric shocks and zapping which included my entire body and most sensitive body parts. I became sucidal and so fearful of reinstatement because it was a decision of kill Myself or reinstate and live. My husband and daughter had made me reinstate due to not wanting me to kill Myself. I reinstated half the amount I had started with and it isn’t controlling everything but it has stopped the severe brain zapping and electric shocks. Doctors didn’t want to give me back the medication and do see this as drug addicts and seekers. I told my Neurologist I was gonna take my own life because of being tortured for way to long! Doctors don’t believe especially when you’re off after 11 months of still experiencing severe withdrawals! Every system is involved with me. I am totally frightened of what to do next and if my doctor will continue to write out my scripts or end it. Of course I will have zero choice but to then take my own life for NO MORE TORTURING ME! Hopefully one day Doctors will acknowledge the harm done to Unknown Patients Torture! I believe I have fell into the category of Permanently Damaged by Benzodiazepines. Almost 40 years on these Drugs!!
Thank you for sharing your story of the horrific suffering you endured and your ultimate survival. Don’t know why I’m always shocked at how young some are who have gone through this torture. I am 63, was prescribed valium 15 yrs ago for electrical surges in my body. I repeatedly ask all my docs if this drug could cause me harm long term. I was ALWAYS told no, you’re on a low dose. As you stated, it doesn’t matter the dose OR benzo. They are ALL poisonous! I have lost my life as I knew it. My family is suffering bc they wonder what happened to me. I don’t have any hope of getting off…I cannot survive life or the thought of years of withdrawals, even though I’ve been in tolerance withdrawals for years. I don’t want to live much of the time. But my hope in Jesus and my G kids draw me back to life. The thing that is so brutal is the absence of any joy and the deep depression. God bless and protect you and all of us who are suffering from this benzo disease.
Mary, have you been tested for Lyme disease and other tickborne diseases? I’m sure there are quite a few things that can cause electrical surges in the body, but that was one very prevalent symptom for me. I actually felt like I had electricity running through my whole body. Most doctors are extremely ignorant of Tickborne diseases and how to treat them, And of the multitude of symptoms that could present. They actually overlap with so many of the benzodiazepine symptoms it’s not funny. The regular Western blot is quite useless as is the Eliza test which is even more useless for tickborne diseases. I would recommend getting a test from I Gene X for not only Lyme disease, but also for Bartonella which are grandparents called cat scratch fever. To learn more about Lyme disease and coinfection’s you can Google : ILADS which is the international Lyme associated disease society, And then put in Joseph Burrascano, MD and that will take you to his protocol for Lyme disease and coinfection’s. I am not by any means saying that you have this, but since you had the electrical shocks before starting the Valium like I had electrical pulses before starting my Ativan, It is a possibility. You will have to pay for these tests out of pocket, but as I say the regular Western blot is quite useless. I would go buy Lyme literate doctors and what they say as opposed to the infectious disease society. They are far more accomplished in the field of tickborne diseases! The other lab I would highly recommend possibly more than I Gen X would be DNA Connections. I have not used this test personally, but A doc that I used who is quite well-versed in Lyme disease says that this test is superior to I GeneX. I Gen X is a very good lab though. You May have to find a doctor that does these tests, but I would call the companies to find out, if you are interested in looking into this. There are some very good docs or holistic practitioners that have used herbals and homeopathy as opposed to antibiotics. I would highly recommend this if indeed this is something you need to tackle. The only reason I mention that is because Tickborne diseases become well entrenched in all tissues and cells of the body and brain relatively quickly. The 3 to 4 weeks of doxycycline or amoxicillin is nothing but a very bad joke! I would be very happy to provide names of people who can treat you well if this happens to be something you need and/or desire. hugs and prayers!
Your a god sent you are helping so many people like me who are suffering as you are god bless all of you
I took benzos for THIRTY years. I did know they are addictive. But I did NOT know about tolerance WD. I do now. My physician forced me to go cold turkey. That should never be done, but it did to me. My physician called the prescribing psychiatrist and he would no longer give me refils.
My health on benzos had gone steadily downhill for about 12 years, which corresponds to my being put on Klonapin. I became weak, dizzy, lost so much weight I got down to 85 lbs. I hamany falls because my balance was so bad. Specialists told me I had fibromyalgia, CFS, and possible MS or Parkinsons.
I did a cold turkey. The first 4 days I was in a psych hospital, not by choice. I was told if I did not go, the doctor would have me Baker acted. Well, this place had NO clue about benzo withdrawal. NO CLUE. I was treated as a common street addict, publiclly shamed for my addiction by the Social Worker. Thank heavens that after 4 days my insurance refused to pay and the hospital promtly booted me out. In full blown withdrawal! I was hallucinating with all five sense by then and became extremely paranoid that the hospital was going to come get me. The first month was something out of a horror movie. By month 3 I had found BenzoBuddies and that is when my true education began. I slowly began to understand what was going on. I felt totally crazy and sick for about 4 years. It very slowly got better. Six years ago I sold my house and moved to a new town, still in major DP and DR. But now, 6 years later, I am healthier and happier than I have been in perhaps 20 years! ALL my old symptoms disappeared. All along, it was benzos and nothing else.
I forgave my former physician because along the way I realized that going cold turkey was my ONLY chance of getting off benzos. I was so addicted. A taper – no way could I have handled that.
I still going on BenzoBuddies, because I now just want to help other people in the same situation. I literally owe my life to that forum.
Annie
Thank you for sharing your encouraging sorry even though it was 4 years of hell for you. I’m sorry they cold turkeyed you. It’s awful what these doctors and drugs can do to you.
I followed your posts in the fb groups during and after my withdrawal from clonazepam. Please know that I and many others understand precisely where you are coming from and are very grateful you have donated your time to BIC.
Excellent article. My brother fell into the category of “cannot cope and ended his life” part of your article toward the end. I am glad that you were “lucky” and that you have helped form the BIC. Please continue to educate and send your articles. Thank you.
I am 54 and I too have been taken a benzo for 26 years now. Started with Xanax to kolonapin to Ativan the last 16 years. And my biggest fear has came by my doctor of 16 years of prescribing the Ativan decides to cut me off cold turkey untill I got enough energy to go in and tell him that he shouldn’t just stop this med just like that. I finally got through to him letting him know the horrible painful withdrawal I would go through. He was able to titrate me down from 3 mg a day to .5 mg 3 x a day for 2 months.
Now I’m out of meds and losing it . I feel like I’m dying for real.
Electric shocks on my skin and hands . Swollen eyes . Painful qlenching jaws. Sweats, no appetite headaches extreme headaches and can not tolerate noise or sun
Or any smells . My taste buds are all out of whack. No sleep. Depression and panic anxiety attacks even greater .
I can not live like this . I’ve lost my family and friends due to not functioning.
Not a good quality of life to live like this . No one understands me.
I used to work all the time and enjoy doing my hobbies but it’s gone and I’m really scared
Some one tell me what do I do? I’m begging to just feel ok again. It’s as I’m losing my mind and need hospitalization
Anyone out there please I need advice
Cbd and medical marijuana helped me with these symptoms
Marina
I hope you have managed to stabilize and continue on your healing. Please update us. I pray you are doing better.